Friday, January 4, 2019

50-Plus Resources, Including Groups for Veterans, to Help You Live Better with Chronic Pain


From A to U, here are more than 50 organizations to go to for information to help you manage the challenges of living with chronic pain. 

Alliance for Balanced Pain Management
This alliance calls for greater understanding and access to balanced pain management, and disseminates the latest news on managing pain.
Alliance for the Treatment of Intractable Pain
The nonprofit works to promote near-term sea changes in public consciousness and government policy, implementing a needed balance between appropriate treatment of  intractable pain, versus addressing a real but presently misdefined “addiction crisis” in America and Canada.
American Academy of Medical Acupuncture
The American Academy of Medical Acupuncture is the professional society of physicians who have incorporated acupuncture into their traditional medical practices. Explore this site to learn more about acupuncture and to find out if it would be beneficial for your condition.
American Academy of Orthopedic Surgeons
Visit this site for a vast array of information on injuries and diseases of your body’s musculoskeletal system—how they are treated, as well as how they can be prevented.
American Academy of Pain Medicine
This organization represents doctors in the field of pain medicine. The website also has a patient education center and doctor locator.
American Cancer Society
From basic information about cancer and its causes to in-depth information on specific cancer types— including risk factors, early detection, diagnosis, and treatment options—you'll find it on this site.
American Chiropractic Association
This site offers a wealth of patient information, health and wellness tips, research, findings and statistics. You can also search for a chiropractor in your area by city, state, and zip code.
American Chronic Pain Association
Geat resources, including videos, on this pain-patient oriented website that also has information on various pain conditions, pain management for each and drug and nondrug therapies. Website also has a comprehensive listing of local support groups and information for Veterans.The website also has information about transcutaneous electrical nerve stimulation (TENS), which can interrupt the tranmission of pain messages to the brain and help in the treatment of certain chronic pain problems.
American College of Obstetricians and Gynecologists
ACOG’s patient page offers information you can trust from the leading experts in women’s health care. View fact sheets and extensive frequently asked questions on everything from contraception, to labor, postpartum care, and hysterectomies. You'll also find information on pelvic pain and other gynecological conditions here.
American College of Rheumatology
This professional organization of physicians, other health professionals, and scientists engages in education, research and advocacy to improve the care of people with arthritis and other rheumatic and musculoskeletal diseases. The website has many useful fact sheets for patients.
American Lyme Disease Federation
A useful resource for patients seeking education on Lyme disease. The website explains symptoms, treatment and dispells misinformation, and also includes useful quizzes and a tool to help you find physicians to treat the problem.
American Massage Therapy Association
The professional association for massage therapists offers a therapist locator service and access to the latest research on the health benefits of massage therapy.
American Migraine Foundation (AMF)
AMF is a non-profit organization dedicated to the advancement of research and awareness surrounding migraine headaches. Its mission is to mobilize a community for patient support and provide a wealth of up to date information on living with and treating migraines.
American Orthopedic Foot and Ankle Society
The official patient education site of the American Orthopedic Foot and Ankle Society, FootCareMD, is designed as a powerful education resource to learn about your foot condition and treatments, as well as aiding informed decisions about foot care health.
American Physical Therapy Association
This site offers a vast array of information on preventing and treating pain conditions, and maintaining good posture throughout life. The website can also help you locate physical therapists near you.
American RSDHope
RSDHope offers masses of information on complex regional pain syndrome (also known CRPS), including treatment options, advice for loved ones and tips on coping.
American Sickle Cell Anemia Association
This nonprofit organization provides a wide range of services to those individuals and families with either sickle cell trait or variants of the disease itself, including diagnostic testing and counseling.
American Sleep Association
The primary mission of this organization is to improve public health by increasing awareness of the importance of sleep and the dangers of sleep disorders. The American Sleep Association provides various self-help strategies for treating insomnia, a common side effect of chronic pain.
American Society of Acupuncturists
Visit the American Society of Acupuncturists to find a practitioner in your state and learn about how acupuncture could help your condition.
American Tai Chi and Qi Gong Association
The ATCQA is a great resource for patients looking to learn about the benefits of tai chi and qi gong in pain management for conditions such as arthritis, diabetes, mental illness, and so on.
Arthritis Foundation
This nonprofit organization produces research updates, a bimonthly magazine called Arthritis Today, and more than 100 consumer publications. Its website has comprehensive information for patients suffering with arthritis.
Biofeedback Certification International Alliance
In additional to fostering the certification of biofeedback practitioners, the website has a search engine to help you access practitioners with various specialties.
Centers for Disease Control and Prevention
The Centers for Disease Control and Prevention is a useful resource for arthritis and cancer patients. The website offers scientifically accurate information in a variety of formats, including: videos, podcasts, printed publications, and blogs.
Chronic Illness Advocacy & Awareness Group
>The Chronic Illness Advocacy & Awareness Group envisions a world where those with chronic illnesses/painful conditions are guaranteed appropriate care and access to prescription opioid medications without stigma, fear or push-back, particularly from the medical community.

Chronic Pain Research Alliance
The Chronic Pain Research Alliance promotes high quality research on chronic overlapping pain conditions, discusses treatment effectiveness, and publishes Cutting Edge, an electronic newsletter developed to keep the medical-scientific community abreast of research advances.
Coalition For Headache and Migraine Patients
The Coalition For Headache And Migraine Patients (CHAMP) provides support to people with headache, migraine and cluster diseases who are stigmatized and under-served. The coalition includes 12 national headache and migraine patient advocacy groups. By working together, CHAMP advances the causes of more research funding, increased public understanding of headache diseases, and improved treatment options for those battling these debilitating conditions.
Endometriosis Foundation of America
This organization provides disease information and support for those suffering with endometriosis. With frequently asked questions, advice on finding the right endometriosis specialist, and research participation opportunities, the Endometriosis Foundation of America informs both the medical community and the public.
Facial Pain Advocacy Alliance

The world's only patient-led 501(c)3 nonprofit dedicated to serving the chronic facial pain community.
Foundation for Peripheral Neuropathy
If you suffer from painful neuropathy, this website can help you find neuropathy support group near you. It also has information on complementary and integrative therapies, and an extensive directory of neurologists.
International Association of Yoga Therapists
IAYT supports research and education in yoga and serves as a professional organization for yoga teachers and yoga therapists worldwide. The organization aims to establish yoga as a recognized and respected therapy. Visit this site for find out more about yoga therapy and how to find the right program for you.
 International Pain Foundation (iPain)
iPain provides services that address needs of chronic pain patients with conditions such as RSD/CRPS, post cancer pain, fibromyalgia, diabetic neuropathy, lyme, lupus, and more. Not only does the website provide comprehensive learning resources from healthcare professionals through articles and webinars, but it also has a social network and organizes events for pain patients.
 International Osteoporosis Foundation
The International Osteoporosis Foundation provides information on osteoporosis, osteoarthritis and sarcopenia.
Lupus Foundation of America
This organization implements programs of research, education and advocacy in order to help solve the mystery of lupus. Visit the website for research news and to search for a local chapter near you.
 Lyme Disease Association
This organization is dedicated to Lyme disease education, prevention, research funding and patient support. The Lyme Disease Association website has many resources for patients, including support links, prescription and medical bill assistance, and a doctor referral database.
Narconon
www.narconon.org
http://www.narconon.org/drug-rehab/how-to-help-with-opiate-addiction.html
Concerned that you or a loved one may be addicted to opioids? You can learn more about the signs and symptoms of addiction and find help for long-term success. Established more than 50 years ago, Narconon uses an evidence-based, drug-free approach to rehabilitation.
National Breast Cancer Association
The National Breast Cancer Association continues to grow every year to help more and more women around the world by educating them about breast cancer and providing free mammograms to women in need. Visit this website for information on early detection, common myths, and access to educational resources and fundraising toolkits.
 National Cancer Institute
The organization has extensive information on all types of cancers. It disseminates information on causes and prevention, coping, screening, managing cancer care and much more.
National Center for Complementary and Integrative Health
This government agency disseminates a wealth of science-based information on the safety and efficacy of complementary and alternative medicine (CAM) techniques.
National Certification Commission for Acupuncture and Oriental Medicine
Use this site to search for acupuncture professionals by region.
National Fibromyalgia and Chronic Pain Association
This organization promotes scientific research on various pain conditions and provides information for those suffering with them. The website features contacts for support groups and frequently asked questions.
National Headache Foundation
This foundation is dedicated to improving the lives of people suffering from headaches. The website has useful resources for managing headaches, as well as a personalized, interactive tool to guide you to pain relief.
National Institute of Neurological Disorders and Stroke
The National Institute of Neurological Disorders and Stroke has extensive information for patients and caregivers. NINDS Fact Sheets provide an overview of a variety of disorders, including common symptoms, methods of diagnosis, and available therapies.
National Lymphedema Network
The National Lymphedema Network is a great resource for patients suffering with lymphedema. Visit this website for information and research, answers to your questions, help finding the best treatment, and connect to others in the community.
National Organization for Rare Disorders (NORD)
NORD is a nonprofit patient advocacy organization dedicated to the individuals with rare diseases and the organizations that serve them. NORD and its more than 260 pateint organization members, is committed to the identification, treatment and cure of rare disorders through education, advocacy, research and patient services.
National Pain Foundation
The National Pain Foundation is a nonprofit organization whose mission is to transform the way pain is understood, assessed and treated. Visit this website for advice on managing different types of pain and information on new studies.
National Vulvodynia Association
The National Vulvodynia Association provides many useful resources for women suffering with vulvodynia including: online patient tutorials, health care provider lists, support services, self-help tips, and patient stories.
 Neurological Disorders and Pain
Learn more about managing pain from neurological disorders. The Cleveland Clinic has resources, information and hosts a community board where patients with chronic pain from neurological disorders can exchange information.
Osteoporosis Foundation
This organization is committed to preventing osteoporosis and promoting awareness about bone health. The website features a wealth of information for patients relating to diagnosis, fractures and fall prevention, and community support groups.
Pain News Network
Pain News Network is a non-profit online news service that provides in-depth coverage about chronic pain and pain management. The group's mission is to raise awareness about chronic pain, and to connect and educate pain sufferers, caregivers, healthcare providers and the public about the pain experience.
Reflex Sympathetic Dystrophy Syndrome Association
For those living with CRPS/RSD. The RSDSA is a great resource for information on what to do after diagnosis, how to cope, and current research.
Stanford Pain Management Centerat Stanford University Medical Center
The Stanford Pain Management Center, a leading pain treatment center, has resources, information and videos for people living with chronic pain.
Stupid Cancer Association
The Stupid Cancer Association serves as a bullhorn for the young adult cancer movement. The website features information on insurance, coping, regional support groups and much more.
US Pain Foundation
The mission of the U.S. Pain Foundation is to educate, connect, inform and empower those living with pain. As a nonprofit organization dedicated to serving those who live with pain conditions, the US Pain Foundation helps individuals find resources and inspiration.

JUST FOR MILITARY VETERANS
 

All American Alternatives
allamericanalternatives.org
Combating stress by connecting veterans to alternative medical providers in an effort to reduce the risks of becoming dangerously over medicated.
Catch a Lift
catchaliftfund.org

Through granted fitness programs nationwide, Catch A Lift is mentally and physically healing veterans one by one.The group's mission is from pain to purpose.
Cohen Veterans Network
cohenveteransnetwork.org
Connecting veterans and thier families to high-quality mental health care.
The COMMIT Foundation
commitfoundation.org
Helping veterans transition from military life to civilian careers.
Defense & Veterans Center for Integrative Pain Medicine
DVCIPM.org
Innovative pain treatments, research and policy initiatives to improve the management of pain in military and civilian medicine.
Department of Defense, Patient Safety
health.mil/dodpatientsafety.aspx
The official website of the military health system. Resources for creating a culture of patient safety and quality.
Mesothelioma Veterans Center
US veterans make up more than 30% of all patients suffering from malignant mesothelioma.
https://www.mesotheliomaveterans.org/https://www.mesotheliomaveterans.org/
MOVE! Weight Management Program
MOVE! is a weight management, health promotion program designed to improve the lives of Veterans. Easy to follow programs based on the most up-to-date nutrion science, MOVE!'s ideas encourage healthy eating, more physical activity and weight loss.
National Center for PTSD
ptsd.va.gov
A division of the Department of Veterans Affairs, the National Center for PTSD is dedicated to research and education on trauma and PTSD. The focus of the organization is on the most current research to help those exposed to trauma.
Operation Warrior Shield
operationwarriorshield.com
Comprehensive support programs focused on transition, health and wellness, employment, prevention of homelessness, peer engagement, and connections to community resources.
Operation We Are Here
operationwearehere
Resources for supporters of veterans and military families
Save A Warrier
saveawarrior.org
Support and assistance with PTSD-related issues.
Special Operations Warrior Foundation
specialops.org
College scholarships for the surviving children of fallen Special Operations Forces and financial grants for those severely wounded service members.
Stop Soldier Suicide
http://stopsoldiersuicide.org/

Empowers military families  and the community by providing free resources and support to soldiers past and present. Organization can anticipate and mitigate suicide risk factors and help meet the complex needs of the military community. Organization promotes resiliency, inspires hope, and encourages healing and personal growth.
Swords to Plowshares
www.swords-to-plowshares.org
Established in 1974 to heal the wounds of war, restore dignity, hope, and self-sufficiency to all veterans in need, and to prevent and end homelessness and poverty among veterans.
Team Red, White & Blue
www.teamrwb.org
Connecting veterans through their community through physical and social activity.
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